So, what’s life-like being a mother to an autistic child you may ask???
Well, there isn’t a straight forward answer to that question, every autistic child is different. They all have different struggles & needs. For us the biggest struggle we have is Meadow-Elizabeth’s sleeping pattern, or non-existent sleeping pattern. She did get medicated for 2 weeks, and that 2 weeks was bliss!!! I could finally sleep, which is an unknown feeling in this household.
It’s currently 11pm as I’m writing this, and Meadow-Elizabeth is wide awake watching tv. Normally I wouldn’t mind but this past weekend i have been lucky to get 4 hours sleep a day! This is my biggest struggle, on so little sleep i still have to deal with the daily life as a mother of 3 and a wife to be.
Some days i do wonder how i manage to survive on so little sleep, i guess my body is just used to it by now. I know it’s not healthy, i know i should get more sleep. I also know if i was to visit my GP they would prescribe me sleeping tablets straight away. Yet when it comes to children with additional needs they just don’t like to help. We have been to so many “sleep clinics” we’ve tried so many different methods and alternative treatments. NONE WORK!
What did work was melatonin! That drug was amazing!! Yet after 2 weeks of being able to use it, our GP decided it was no longer needed, because it worked!! YES! They stopped us having a treatment that worked, because it worked for 2 weeks! That was over 3 months ago now. So we’re back at the starting line again, back to fighting to get back a treatment to hopefully get this household some sleep.
Yes, I know not every parent would want to give their child a drug that would make them sleep, but unless you’ve lived with a child at the age of 6 doesn’t sleep at all. Then you would understand. When you cooking food at 2am to please a wide awake 6-year-old, while you’re trying not to fall asleep standing up. Then you would understand. Sometimes that’s all us autism parents need, is someone to understand the daily struggles we go through.